I read the description and thought, "wow. There is a lot wrong here. This poor boy."
And then I saw the pictures of his beautifully happy face, and those pictures reminded me of my son, and I cried. I cried and cried, and then I buried my face in the blanket so I wouldn't wake up my fiance, and cried some more.
He'll be 3 years old December 21st of this year, and he only weighs 19lbs. My 1yr old already weighs near 30. This boy has a feeding tube that goes right into his digestive tract, and it stays there for most of the day. He has a narrow throat which I suspect is what causes the hyperactive gag reflex. I also guess that's why he doesn't weigh so much.
I want to make him a Spiderman doll for his birthday this year. The family has posted the address and has encouraged everyone to send something. He really likes superheroes.
Should you feel compelled to read about him, to look in on him and see how he's doing, to send him something, this is the link to the page:
http://www.facebook.com/AVerySpecialCase
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